Types of long term conditions Expand A long-term condition can affect your physical or mental health. The list below details some conditions but is not exhaustive: Allergy/anaphylaxis Addictions – substance and alcohol, etc. Asthma ADHD Atrial fibrillation Allergic rhinitis/rhinitis/sinusitis/rhinosinusitis Childhood constipation Amnesia Chronic fatigue syndrome/ME Amputations Chronic kidney disease Anaemia Chronic obstructive pulmonary disease Angina Chronic pain Angiooedema Congestive heart failure Anklosing spondylitis (and other arthritic conditions) Dementia Antenatal screening for haemoglobinoapthies – sickle cell and thalassemia, Downs Depression Anxiety and stress disorders (including complex and post-traumatic stress disorders) Diabetes: Type I Aphasia Diabetes: Type II Ataxia’s Endometriosis Autism Epilepsy Autoimmune disorders (e.g. lupus, Sjögrens syndrome) Hypertension Blood disorders Hepatitis B Brain injuries (including stroke and TIAs) Hepatitis C Bronchopulmonary dysplasia (chronic lung disease of infancy) HIV Burn injuries Inflammatory bowel disease Cancer Irritable bowel disease Cardiac arrhythmias Low back pain Cerebral palsy Migraine Crohn’s disease Multiple sclerosis Coeliac disease Osteoarthritis Connective tissue diseases Parkinson’s disease Coronary heart disease Cystic Fibrosis Digestive conditions, stomach ulcers, oesophagus, reflux Dizziness Dyslexia or dyspaxia Eating disorders (anorexia/bulimia) Eczema Endocrine disorders (thyrotoxicosis, hypothyroidism, hypogonadism, Cushing syndrome, Addison’s disease) Fibromyalgia/chronic widespread pain Gout Gynaecological problems, chronic pelvic pain Haemophilia and other coagulation disorders Heart failure Learning disabilities Lung fibrosis Lupus Malaria Medically unexplained symptoms Mood disorders (not only depression, but mania and bipolar disorders) Motor neurone disease Multimorbidity Multisystem autoimmune diseases (MSAIDs, including lupus) Muscular dystrophy(ies) Neuralgias (including, head and back pain) Newborn screening programme diseases, including thyroid disease, hearing loss Obesity Obstructive sleep apnoea Occupational lung disease (various) Osteoporosis Other slowly degenerative neurological conditions Peripheral vascular disease Personality disorders Phobias Physical disabilities Polycystic ovary disease Post-traumatic stress Progressive supranuclear palsy Psoriasis Rare disease, genetic disorders Sarcoidosis Sensory problems/disabilities (deafness/blindness) Severe skin conditions Sickle cell disease Skin conditions Sleep disorders Speech deficits Spina bifida Spinal injuries Stroke/transient ischaemic attacks Tuberculosis Urinary Incontinence
What is a long term condition? Expand A Long-term condition (sometimes called a chronic disease) is a condition for which there is currently no cure. Long-term conditions are managed with drugs and other treatment and are self-managed. The condition can affect a person's physical or mental health. Examples of a long-term condition are: diabetes, chronic obstructive pulmonary disease (COPD), arthritis, asthma, heart disease, fibromyalgia, coeliac disease, schizophrenia, anxiety, hypertension, chronic pain, etc
Is there self-management support in my area? Expand Self management uk is commissioned to provide self-management support by Clinical Commissioning Groups (CCGs), local authorities, charities, private businesses, etc. The first thing to do is contact you GP to ask about self-management and what is available in your area. If your GP can't help, then get in touch with us.
What is the national policy on long-term conditions support? Expand Supporting People with Long-Term Conditions; Commissioning Personalised Care Planning is a Guide for Commissioners. It sets out how to adopt a personalised approach for individuals with a long-term condition and how to reflect this in the commissioning of services. National Framework for the NHS
What is co-morbidity? Expand Comorbidity is the presence of one or more additional conditions, diseases or disorders co-occurring at the same time as a primary condition, disease or disorder.
Who do we work with? Expand We are proud to be associated with third sector and govermental organisations whose aims and objectives reflect our own, namely to help people with long-term conditions to get the support and education they need to live better lives. National Voices NHS Alliance Coalition for Collaborative Care (C4CC) Chronic Pain Policy Coalition National Rheumatoid Arthritis Society (NRAS) Self-Care Forum The Health Foundation The Kings Fund In addition, we work with a diverse range of partners including: Clinical Commissioning Groups (CCGs) Public Health Local Authorities Charities Educational institutions Health bodies Carers associations Insurance companies Private business
What is peer support? Expand Peer support is when people use their own experiences to help each other. Forms of peer support include: community groups mentoring befriending self-help groups online communities support groups Support is based on sharing experiences Peer support can improve your emotional health, wellbeing and sense of belonging. A vital part of peer support is mutual respect; peer support aims to help both those giving and receiving support. Everyone's experiences are treated as equally important, so you might find this gives you a different experience to more traditional support options.
What is Cognitive Behaviour Therapy (CBT)? Expand Cognitive behavioural therapy (CBT) is a therapy that can help you manage your problems by changing the way you think and behave. CBT combines a cognitive approach (examining your thoughts) with a behavioural approach (the things you do). It aims to break overwhelming problems down into smaller parts, making them easier to manage.
What do we mean by a community? Expand A community in our sense is a social unit (a group of people) who have something in common. In our work the common factor is having a long-term condition or caring for someone who has a health condition. Communities also share a sense of place, a village, town, or neighborhood.
What is empowerment? Expand Empowerment is the process of becoming stronger and more confident, especially in controlling one's life.
Who is a young carer? Expand A young carer is someone aged 18 or under who helps look after a relative who has a condition, such as a disability, illness, mental health condition, or a drug or alcohol problem. Most young carers look after one of their parents or care for a brother or sister.
Who is a carer? Expand A carer is anyone who cares, unpaid, for a friend or family member who due to illness, disability, a mental health problem or an addiction cannot cope without their support.
What is the Patient Activation Measure (PAM) Expand The Patient Activation Measure (PAM) is a tool that enables healthcare professionals to understand a patient's activation level, or their level of knowledge, skills and confidence to manage their long-term condition. The PAM survey is licenced by Insignia Health.
What's Patient Activation? Expand Patient activation is a widely recognised concept. It describes the knowledge, skills and confidence a person has in managing their own health and health care. People who have low levels of activation are less likely to play an active role Patient activation can be used to reduce health inequalities and deliver improved outcomes, better quality care and lower costs
What is self-care? Expand Self care is care provided “for you, by you.” It's about identifying your own needs and taking steps to meet them. It is taking the time to do some of the activities that nurture you. Self care is about taking proper care of yourself and treating yourself as kindly as you treat others. Self-management is a key enabler of self-care.
What is self-management? Expand Self-management and self-care are crucial skills people with either a physical or mental condition or a carer need. On average, people living with a health condition spend just 3 hours per year with their health care team; the rest of the time they are managing day to day life with that condition or their own – or caring for themselves or self-managing. Self-management encourages you to: - find out more about your condition - learn new skills and tools to help you manage your health - work better, and in partnership, with your health care professionals - take charge of your health care and choose what is right for you - get support from other people in a similar situation to you Self-management is suitable no matter your long-term health condition (s); asthma, diabetes, heart disease, arthritis, chronic pain, and more.
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